press — Patient Stories — ACM Heart2Heart

Stay inspired.

Explore stories of hope from our community and beyond.

Find out what other members of this community are curious about.

When you’re ready, please share your story, too.

“Sometimes the best way to heal yourself is to use what happened to you to help somebody else.”

Videos

Evan’s ACM Story

Karen’s ACM Story

Jae-Jin

Vokis

Has a question about Ablation.

Sarah

Responding to Jae-Jin’s question about Ablation.

ACM Newsline

Our community shares a common hope for the future — that one day a real cure for ACM will be discovered that doesn’t include a heart transplant.

Here are some links to recent ACM news stories crowdsourced by our members.

Tenaya Therapeutics Receives Orphan Drug Designation from FDA for Gene Therapy for ACM

November 28, 2022

ACM Heart2Heart

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Patient Advocacy

A community of patients, caregivers, friends, and family educating and advocating for each other.

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